I am a very stoic individual. I don’t like to express my pain or vulnerabilities publically. I was at work when the doctor called. He did not ask me where I was or prepare me for the news. He just said hello, told me who […]
Tag: self care
__________HOLIDAYS__________ I love any excuse to celebrate! In my house its normal for us to decorate, cook and do it up on holidays. I also made my own wrapping paper this year. I found this cherry ink spray. I just used that along with white butchers paper […]
Quick post as I have limited energy. Forgive my typos, I’ll try to clean them up once I have more wits.
On surgery day I went from being emotionally distressed to terror as they started popping the IV in my arm, to absolute physical trauma. I came to in the recovery room with horrible pain my shoulder. I was begging someone to hold my hand. The nurser told me she was too busy. There were lots of patients, each nurse had two patients to attend to. They stood in front of these mobile laptop desks.
She told me the pain in my shoulder was due to the gas they fill the body cavity with as the robotics unit moves through the body. The gas had risen to my shoulder. This is the should that I had rotator cuff surgery on when I was 17 years old. The pain felt like someone was tearing my limb apart. It was excruciating.
At some point the let my husband in and he held my hand and fed me ice chips for what I think was hours. I was in and out and confused. They moved me to a room that night. It was nice. A private room. My husband went to take his mom back to our home and to get what he needed to stay the night.
The pain in my abdomen started to become apparent. The pain in my shoulder started to decline. In the morning I found my husband cat napping in a chair, I had a catheter, an IV in one hand, and another in my elbow. I had some serious problems with pain management. There was some amazing staff at this hospital, but I had some serious issues with the morning staff. I did everything I had to do to get released as quickly as possible.
The drive home was painful. Every tiny bump in the road hurt. Walking to my door and up the flight of stairs was really hard. But home is the best place to heal.
I think robotic surgery is not less painful at the beginning, but healing seems to come faster. Each day I fell pretty miserable but there are also little wins every day. I started walking with more ease. I can get out of a chair on my own, I have been eating ok. Every day a little more progress. I stopped taking the pain pills (except for Tylenol and Advil) a few days ago. Yesterday I made my own breakfast.
One big problem this is that cannot get comfortable in any position. It’s hard to sleep. And then two nights ago… my shoulder starts with the excruciating pain again. I got up in the morning and the pain subsided. Then again last night at the end of the evening, the shoulder pain again. I woke up at some point and realized my should is dislocating when I lay on my back. It’s dislocating when I use my arms to pick myself up off the couch. It’s threatening to dislocate when I pick up a coffee cup. I am right back to where I was before I had my rotator cuff surgery. Fuck. The gas they used during surgery destroyed my rotator cuff.
So in the wee hours of the morning, I taught my husband how to relocate my shoulder. Tomorrow I’ll seek a specialist to see if we can repair this damage with physical therapy. I must be the first person to go in to have cancer removed from my abdomen and come out with a damaged shoulder. FML
Today I made a blog post. Tomorrow my goal is to get out of pajamas and put on real clothes maybe. (My goals right now are super small.)
Today is Thanksgiving. It’s a good day to make a list of everything I am thankful for. I’ll go work on the long list.
Happy Thanksgiving my friends.
I actually like to make my own almond milk. It’s really easy, it just requires a bit of forethought because you have to soak the almonds a day in advance. When I don’t have time to make my own, my favorite brand is Califia Unsweetened Vanilla Almond […]
Uterine cancer is also called endometrial or womb cancer. People don’t talk about it enough… perhaps because it mostly happens to older women? Perhaps because women are not sharing their grief with this diagnosis? But uterine cancer can also happen to younger, body positive, fearless women like me. For example, I have a genetic syndrome. I got this shit younger than most.
Below are the signs that got me into the doctor’s office. Some of them I have had for a long time and did not know they were signs of cancer. (It’s a little like the frog in a pot of hot water analogy. I am the frog. Cancer is the HOT water. I was not dropped into the hot water. I was gently set in a nice pot of warm water. Life slowly turned the heat up on me. I stayed in the pot, blissfully unaware until it was suddenly it was painfully obvious that I am in a pot of hot water!)
I’d love it if I could help a few people get diagnosed a littler earlier and better care for their body.
- Watery blood at the end of my cycle. For me, this started a few years ago. I figured it was because I was perimenopausal. I had no clue this was a sign of an issue.
- A dramatic increase in monthly bleeding, in both the amount of blood and number of days. I had always had a rather light cycle so this one was obvious to me. This started five months ago. I was on the road for work. I was bleeding a lot. I knew I was becoming anemic from the blood loss. I spoke with my older sister to see if she could give me any insight into the possibility of this being a part of perimenopause. I did the self-remedy of taking iron.
- Bruising. This one freaked me out. I developed a large black bruise on my tummy. I knew I had not been injured so that was the last sign I could not ignore. I had other little weird bruises on my body too, like on the top of my wrist.
For women who are past menopause, I understand the number one sign of uterine cancer is that they begin to bleed, long after they had originally stopped having their monthly cycle.
I also learned doctors have a good reason to always ask you about family history when it comes to cancer. (Duh! I just never thought to ask why they always ask.)
If you have had close family members who had cancer (especially when they were young) you might want to request a genetic screening. This way you have some understanding of your risks and can be more proactive in your wellness. If you come up positive it means doctors will do actual cancer screenings on your body at a younger age and perhaps with more frequency.
My family history is a little mysterious. My mom died young. Most of the rest of my family is either scattered to the winds or so horribly repressed that they like to pretend they don’t have a body, much less illness, much less share their experience around illness.
My siblings are the exception. We talk. As much as it sucked to tell them there is a genetic issue in our bloodline, it also felt good to give them the information they may need to care for themselves.
So don’t be an ass. Live long and do good. Listen to your body. Talk with your family. Ask your doctor questions. Get screenings when possible.
Still managing to keep my head in a good place. I have these passing panicked thoughts about surgery and incisions and losing part of my body to cancer. I am getting pretty good at setting them aside. The mind is a funny thing, you can play honest […]
I’m making a list…
- My brother’s wedding
- Getting new tattoos with my husband when we get our no evidence of disease report
- Going back to martial arts
- Learning how to do aerial yoga
- Plotting my spring garden (I’m planting/learning to grow more food next year!)
- New Deadpool movie (the first one was so good!)